The State Department of Banking and Insurance Issues a Bulletin Regarding the Autism Insurance Law
Many of the items that Autism New Jersey advocated for are included.
On January 14, the State Department of Banking and Insurance issued a bulletin regarding the autism insurance law. This bulletin provides guidance to insurance carriers on how to implement this law beginning on February 9th. (Regulations will follow at a later date.)
Here are the main points:
- Coverage for expenses incurred in screening and diagnosing autism or another developmental disability;
- Coverage for expenses incurred for medically necessary behavioral interventions (ABA) for the treatment of autism in individuals under 21 years old, and that the $36,000 cap may not be applicable;
- Benefits for ABA services provided or supervised by BACB certificants (BCBA and BCBA-D)
- Coverage for expenses incurred for medically necessary physical therapy, occupational therapy, and speech therapy services for the treatment of autism or another developmental disability;
- Carriers must provide the coverage without consideration of whether the services are “restorative;”
- Autism is defined as autism spectrum disorders;
- Benefits for the coverage of the “Family Cost Share” expense incurred for certain services obtained through the NJ Early Intervention System.
These guidelines will likely have a substantial impact on availability of reimbursement for providers and most importantly, children’s access to ABA and other necessary therapies.
To access this bulletin, click here. Your health insurance plan may or may not fall under this new law. Please call 800.4.AUTISM for more information and guidance.
November 2009 Election
This November 3, 2009, New Jersey will be facing an election for governor, lieutenant governor, General Assembly and Senate seats in District 6 (Camden County) and District 23 (Hunterdon and Warren Counties). It is important to be informed on candidates and their platforms on issues impacting the autism community. Please visit www.njvoterinfo.org to get a comprehensive overview of all the candidates to make an informed choice in this upcoming election.
In addition to information on the candidates, you may have some questions on the voting process. Please visit www.njcdd.org/Voting/votinghome.htm to answer any of your questions on the voting process.
Menendez Votes in Favor of Health Insurance Reform Bill in Finance Committee
NJ Senator says moving the process forward is important, but also important to cotinue pursuing improvements on affordability, inclusion of public option. Menendez successfully includes a slew of amendments to help expand access, lower costs and protect consumers including:
Require insurance plans to provide behavioral health treatments. Plans in the exchange must cover behavioral health treatments as part of the minimum benefits standard. For example, applied behavior analysis is a behavioral health treatment for people with autism. Unless behavioral health treatment is explicitly spelled out as a covered benefit, people with autism are not likely to receive comprehensive healthcare.
Click here to read the official press release from Menendez's office.
Menendez Gains Coverage for Behavioral Health in Finance Version of Health Reform Bill
Autism New Jersey, the states leading autism advocacy organization, applauds the members of the U.S. Senate Finance Committee for passing Senator Robert Menendez’s (D-NJ), autism insurance reform amendment to “America’s Healthy Future Act of 2009,” the Committee’s version of the overall health care reform bill. Both Senator Menendez and Senator Max Baucus (D-MT), Chair of the Senate Finance Committee, worked hard to get this amendment passed last night during the Committee’s markup of the bill.
The next step in the process will be for both the House and Senate to complete their separate work on health care reform. Then the two bills must go through a conference committee before reaching the President's desk to be signed into law.
“While we continue to celebrate the recent victory of New Jersey becoming the 15th state to pass health care legislation specific to autism,” said Autism New Jersey Executive Director Linda Meyer. “We recognize the limitations in the state wide bill, as does Senator Menendez. A champion of autism advocacy, Menendez is working nationally to ensure health care coverage for individuals with autism. This is another step towards the goal of healthcare coverage for all New Jersey citizens on the autism spectrum.”
From the office of Senator Robert Menendez:
FOR IMMEDIATE RELEASE
September 25, 2009
CONTACTS:Menendez Press Office 202-224-4744
MENENDEZ GAINS COVERAGE FOR BEHAVIORAL HEALTH
IN FINANCE VERSION OF HEALTH REFORM BILL
Treatments for autism, other behavioral health conditions, included as part of benefits standard in plans that are part of new insurance exchange
WASHINGTON – Late last night in the U.S. Senate Finance Committee, Senator Robert Menendez (D-NJ) scored a victory for families affected by behavioral health conditions, including Autism Spectrum Disorders. As part of Finance’s health insurance reform bill, Menendez gained inclusion of his amendment that will add behavioral health treatment to the minimum benefits package that all plans must provide in the new health insurance exchanges.
“A major goal of real health insurance reform is to ensure that insurance plans won’t deny coverage for necessary and important services – and that certainly includes behavioral health treatment,” said Menendez. “With the highest rate of Autism Spectrum Disorders in the nation, the people of New Jersey certainly understand how important it is not only to have access to this type of treatment but to have insurance coverage for it. Families affected by these conditions shouldn’t have to worry about going bankrupt because of it, and we are trying to help ensure that they don’t.”
The new health insurance exchange that would be created under health insurance reform would be a pool of various insurance plans available to families without employer-sponsored insurance, Medicaid, Medicare or insurance through the Veterans Administration. This amendment ensures that plans in the exchange must cover behavioral health treatments as part of the minimum benefits standard.
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Autism New Jersey Celebrates Victorious Passage of Autism Insurance Reform
On August 13, New Jersey became the 15th state to enact a law requiring many insurance companies to cover the screening and therapeutic treatment for children up to age 21 who are diagnosed with autism and other developmental disabilities. Govenor Jon Corzine signed the measure during a ceremony at PSE&G’s Children’s Hospital in New Brunswick, attended by more than 200 family members, children with autism, legislators, hospital officials and media.
Under the legislation, A-2238/S-1561, insurance companies will be required to provide up to $36,000 a year for medically-necessary behavioral early intervention for all patients with autism, and with other developmental disabilities, who are under 21 years of age. New Jersey health insurers would provide diagnostic coverage for screening for autism and other developmental disabilities. The mandate also includes therapeutic services, including any medically-necessary occupational, physical and speech therapy.
Scheduled to take effect in February 2010, the law provides up to $36,000 a year, per child, for behavioral, speech, and occupational therapy. Of 15 states with similar requirements, New Jersey is the first to include coverage for other developmental disabilities.
Autism New Jersey, which was instrumental in helping to advance this legislation, lauded the new law. “Most families have been fighting to get healthcare coverage for their children for years,” said Autism New Jersey Executive Director Dr. Linda Meyer. “This new law ends the discrimination against children with autism in getting the healthcare they so critically need.”
"There is no justification, no rationalization, that makes it possible to turn our backs on people who have so much love in their hearts for their children," Corzine told the packed room. "We have made the diagnosis and treatment of autism spectrum disorders a top priority in New Jersey," Corzine said at the bill-signing ceremony. "The legislation I am signing today recognizes there must be appropriate resources to treat and care for individuals with autism, and provide their families the support they need. By doing so, we enable those affected with autism to function as independent, productive, and empowered individuals and ease the burden of their loved ones."
Assembly Speaker Joseph Roberts, who championed the bill, said the new law mandates that health insurers do the right thing. "Many New Jersey families already are being stretched to their financial edge - but without health coverage for their loved ones, countless families are bankrupting themselves just to give their child the potential for a bright future," Roberts said. "This measure offers real and meaningful hope that they will not battle alone. Failing to help a child try to overcome the obstacles presented by these disabilities will lead to costlier problems later.
The law, however, will not apply to everyone. Only insurance companies regulated by the state, such as Horizon Blue Cross/Blue Shield of New Jersey (the largest insurer in the state), and state and local government plans must comply. Large companies that self-insure or federally-regulated plans are not required to provide the coverage, said Autism New Jersey Public Policy Director Leslie Long. She said the group hopes a federal mandate would be part of universal health care legislation being debated across the country.
See New Jersey Network's coverage of this event.
Meetings of the Governor’s Council for Medical Research and Treatment of Autism
The public is Encouraged to Attend the Next Township Meetings of the Governor’s Council for Medical Research and Treatment of Autism
October 5, 2009
NJ Department of Human Services, Division of Developmental Disabilities Conference Room 199A 5 Commerce Way, Hamilton 08691
Time: 6pm – 8pm
December 7, 2009
NJ Department of Human Services, Division of Developmental Disabilities Conference Room 199A
5 Commerce Way, Hamilton 08691
Time: 6pm – 8pm
U.S. Department of Justice Agrees with Disability Rights New Jersey Waiting List Complaint
On June 29, 2009 the U.S. Department of Justice (DOJ) filed a brief in the waiting list case brought by Disability Rights New Jersey (DRNJ). The DOJ filed the brief as an Intervenor to defend the constitutionality of the Americans with Disabilities Act (ADA) and the Rehab Act when the State of New Jersey made the claim that those two laws were not constitutionally valid. The DOJ brief was titled, “In Support of the Constitutionality of Section 504 of the Rehabilitation Act and Title II of the Americans with Disabilities Act (ADA).”
The Department of Justice defends the ADA and the Rehab Act in its brief and endorsed DRNJ’s application of the Olmstead principles to individuals on the waiting list.
In its complaint DRNJ alleged that in one three-year period 58 individuals on the waiting list for a community residential placement were unnecessarily institutionalized in the state’s developmental centers. Once institutionalized, their right to a community placement attached under Olmstead. DRNJ argued that it makes no sense to first institutionalize an individual before providing him or her with a community placement under Olmstead. Instead, DRNJ argued that if a person qualifies for the waiting list, his or her right under Olmstead to a community residence attaches while he or she is in the community and on the waiting list.
The Department of Justice agreed with DRNJ and stated the following:
“The primary point of Olmstead is the importance of integration, and the language of the [Olmstead ] opinion is broad enough to have put the state on notice that qualified individuals should not be institutionalized unnecessarily, regardless of their current situation. These principles are equally applicable whether the person already resides in an institution or, as here, is integrated into the community but is seeking community-based services so as to avoid institutionalization.”
“It’s time for the State of New Jersey to meet its obligations to fully fund the services that eligible persons need and deserve” said DRNJ Director of Litigation Emmett Dwyer. “Olmstead and the Dept of Justice make it clear that a person should not have to become institutionalized before he or she receives services in the community.” For additional information, contact DRNJ at 609-292-9742.
Agency Director Published in Exceptional Parent Magazine
Current Policies Impacting People with an Autism Spectrum Disorder
By, Autism New Jersey Public Policy Director Leslie Long
http://www.eparentdigital.com/nxtbooks/exceptionalparent/200907/#/92
New Jersey Becomes the 14th State to Pass Autism Insurance Legislation
S. 1651/A. 2238, AUTISM INSURANCE REFORM BILL, passed by New Jersey State Legislature
Thursday, June 25, 2009 The New Jersey state’s legislature passed S. 1651/A. 2238, the autism insurance reform bill, which requires insurance companies to provide coverage of evidence-based, medically necessary autism therapies. The bill now heads to Governor Jon Corzine’s desk for signature into law. Autism New Jersey, New Jersey families who are impacted by autism, Autism Speaks, and other autism advocacy organizations congratulate the state legislature for bringing this critical piece of legislation to fruition. Through this legislation insurers are accountable to cover up to $36,000 annually for a child with autism who is 21 years of age or younger. Coverage includes Applied Behavior Analysis (ABA) therapy, which is recognized as an effective, evidence-based treatment for children with autism. This truly is a significant triumph for all New Jerseyans impacted by autism. Prior to the passing of this legislation many New Jersey families were left to carry significant financial burden of extraordinary health costs in order to provide their children with necessary services
New Jersey now becomes the 14th state to pass autism insurance reform. Thirteen other states – Arizona, Colorado, Connecticut, Florida, Illinois, Indiana, Louisiana, Montana, New Mexico, Pennsylvania, South Carolina, and Texas – have passed similar autism insurance reform bills. Nearly thirty states had bills introduced in their legislatures this year.
A.2238 was sponsored by Speaker Joseph Roberts, Assemblywoman Joan Voss and Assemblyman Vincent Prieto. S.1651 was sponsored by state Senator Joseph Vitale. Autism New Jersey and the autism community of individuals affected by autism, their families, providers, advocates, and the community at large offer a standing ovation to the CHAMPIONS in our New Jersey state legislature on behalf of the autism.
Covered treatments would include:
- Physical therapy
- Speech therapy
- Occupational therapy
- Evidence-based behavioral interventions
- Coverage does not affect educational services provided under an IFSP, IEP or ISP
BILL HISTORY:
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June 25, 2009: The Assembly concurs on passage of S. 1651. The bill now heads to the governor's desk for signature into law
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June 18, 2009: S. 1651 is passed by the State Senate. The bill must go back to the Assembly for concurrence
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June 15, 2009: S. 1651 is passed by the Senate Committee on Budget and Appropriations.
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May 21, 2009: A. 2238 passed by the State Assembly! The bill now heads to the State Senate Budget & Appropriations Committee.
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May 18, 2009: S. 1651 is passed by the Senate Health, Human Services, and Senior Citizens Committee. The bill now heads to the Senate Budget and Appropriations Committee.
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May 18, 2009: Committee Substitute for A. 2238 is passed by the Assembly Health and Senior Services Committee. The bill now heads to the Assembly floor for a vote.
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May 5, 2008: Autism insurance reform bill, S. 1651, introduced in the State Senate. The bill is referred to the Senate Health, Human Services, and Senior Citizens Committee.
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February 25, 2008: Autism insurance reform bill, A. 2238, introduced in the State Assembly. The bill is referred to the Assembly Health and Senior Services Committee.
Bill for Insurance Coverage Autism Spectrum Treatments Clears Committee
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Members of Autism New Jersey joined by supporters on the State House steps following morning testimony
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Autism Speaks Co-founder Bob Wright, self advocate Amy Gravino, Assembly Speaker Joseph Roberts, Jr. and Autism New Jersey Executive Director Linda Meyer
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New Jersey lawmakers advanced legislation on May 18 to provide medically needed, evidence-based health care coverage to residents with autism spectrum disorders. Both the Assembly Appropriations and Senate Health, Human Services and Senior Citizens committees approved the measure. The full Assembly will consider it Thursday, May 21. The Senate version goes to the Senate budget committee. Several Autism New Jersey staff and Board of Trustees members joined Autism Speaks’ co-founder to urge New Jersey lawmakers to pass the legislation, sponsored by NJ Assembly Speaker Joseph J. Roberts Jr., Assemblyman Vincent Prieto and Assemblywoman Joan Voss. In enacting the legislation, New Jersey would become the 11th state to authorize insurance coverage for autism therapies. The measure (A-2238) stems from the 2007 enactment of seven laws that put New Jersey at the national forefront as a leader in providing support to families affected by autism. Testifying were Autism New Jersey Clinical Director Suzanne Buchanan, Board President Dr. Michael Aquino, self-advocate Amy Gravino, and Bob Wright, grandparent of a child with autism and co-founder of Autism Speaks.
Click here to download Autism Speaks’ Action Alert, “An Act Concerning Health Benefits Coverage for Certain Therapies for the Treatment of Autism and Other Developmental Disabilities,” to provide you with additional information regarding this proposed legislation.
Additionally, we also ask that you contact your legislators to convey your support of health benefits coverage for families affected by autism. With your help, we will be able to impress upon legislations the dire need for families to be able to access the medically necessary treatment they need and deserve.
If you have any questions, contact Leslie Long or Debbie Charette at Autism New Jersey – 609.883.8100.
Day Services Funding for 2009 Graduates Secured
A letter was distributed today by Commissioner Jennifer Velez (DHS) and Assistant Commissioner Kenneth W. Ritchey (DDD) with the following announcement:
“It is our pleasure to announce that we will be able to fund day services for 2009 graduates who are interested in either a traditional or self-directed program. Our challenge has been that the Division of Developmental Disabilities’ (DDD) annual budget does not have a separate budget line item for age outs, however, this year funding is included and dedicated to providing day services to the graduates. We understand that day services are critically important and we are very pleased to share this funding news with you.”
Click here to read the official DHS letter.
On April 2, 2009, Autism New Jersey provided testimony at the Assembly Budget Committee Hearing on behalf of the 2009 Graduates, as well as other issues impacting the autism community. In addition to Public Policy Director Leslie Long, the following Autism New Jersey parent and agency members provided testimony:
- Bobbie Gallagher (parent)
- Erica Lofgren (parent)
- Kathleen Moore (parent)
- Tom McCool, Ed.D (Eden Autism Services, President/CEO)
In light of the positive outcome of the announcement of secured funding for the 2009 graduates, it is apparent that our State Legislators respected and responded to the outcry of this critical advocacy issue this testimony brought to their attention.
As many of you know, Autism New Jersey was a leading force in the advocacy effort to secure commitment of funding for the 2008, as well as the 2009 graduates. Although we celebrate today’s announcement and victory on behalf of this year’s June 2009 graduates, we will continue our advocacy work towards a “MANDATORY GROWTH PROVISION” for the 2010 and future graduates.
In Preparation for Autism Awareness Month, Menendez Reintroduces Legislation to Support Families Dealing with Autism
WASHINGTON – With Autism Awareness Month beginning next week, U.S. Senator Robert Menendez (D-NJ) today reintroduced his legislation that would support families dealing with Autism Spectrum Disorders. The Helping HANDS for Autism Act, which is hailed by autism advocacy organizations, is a three-part legislative package that includes a program to guide families seeking services and care, increased awareness among first responders and housing for adults with ASD. At 1 in 94 children diagnosed with ASD, New Jersey has the highest rate in the nation.
“If a family that has been touched by autism seeks support or guidance, it should be readily available,” said Menendez. “This legislation is meant to strengthen the Autism Spectrum Disorder support structure, which can make a real difference in the lives of autistic citizens and their families. I will work to make sure that this issue and these proposals are in the mix as we tackle health care reform.”
"Nothing is more important to families touched by autism than timely access to the information and services they need to meet their daily challenges,” said Leslie Long, Director of Public Policy for Autism New Jersey. “This legislation directly responds to the needs of the autism community and will make a tangible difference in people's lives."
“Each of the three titles included in this legislation offers an important opportunity to address an area of concern for families affected by Autism,” said Elizabeth Emken, Vice President of Government Relations for Autism Speaks. “Autism Speaks thanks Senator Menendez for his leadership in helping families face the challenges associated with autism.”
“Senator Menendez has taken the time to listen to the concerns of individuals with Autism and their families and the need to offer those affected by this lifelong challenge a helping hand in attaining the support, resources and opportunities to live as independently as possible in the community,” said Linda Walder Fiddle, Executive Director of The Daniel Jordan Fiddle Foundation. “The Daniel Jordan Fiddle Foundation fully endorses the Helping Hands for Autism Act, and looks forward to working with Senator Menendez to assure the fulfillment of its goals.”
“The National Autism Center recognizes the importance of the Helping HANDS for Autism Act and its potential positive impact on families,” said Dr. Susan M. Wilczynski, Executive Director of the National Autism Center. “This comprehensive autism legislation encourages enhanced access to autism services, a more prepared community of first responders, and increased independence through housing opportunities for adults -- all vital to the health and well being of individuals with Autism Spectrum Disorders.
Background of legislation:
Helping HANDS for Autism Act of 2009
Sponsored by Senator Robert Menendez
An Act to Increase Housing, Awareness, and Navigation Demonstration Services (HANDS) for Individuals with Autism Spectrum Disorders
Title I: Autism Navigator
The Helping HANDS for Autism Act creates a grant program to provide autism navigator services to help families of individuals with autism spectrum disorders ‘navigate’ the complex, fragmented, and often confusing web of services and care that they need. Navigators will help guide families to current health, education, housing and social services that are often available to individuals in the autism spectrum. Too often families feel overwhelmed after diagnosis and often lost as to where to turn for help. For example, this program will help connect families to important treatment options soon after diagnosis, help families identify education options, help coordinate individuals’ care and community support. This program would provide a trained, knowledgeable hand to help families from the moment of diagnosis throughout their child’s development.
Title II: Autism Awareness
This bill provides for the development, demonstration and dissemination of a standard curriculum for the training of first responders (police, fire departments, emergency medical technicians and other volunteers) in assisting individuals with autism and other cognitive behavioral disabilities. It provides grants to states and local government to support training of first responders. People with developmental disabilities, including autism, have up to seven times more contact with law enforcement officers than others, according to an article in the F.B.I. Law Enforcement Bulletin in April 2001. That is why training is so important. Something as simple as first responders turning off flashing lights and sirens on a police car could make the difference between a peaceful or chaotic encounter.
Title III: Home of Their Own
This bill creates a HUD task force comprised of appropriate national and state autism advocacy groups, community-based organizations and parents who are charged with developing a housing demonstration grant program for adults with autism. The goal of the grant program is to provide individualized housing and services to adults with autism spectrum disorders.
Supporters Autism Speaks Autism New Jersey The Daniel Jordan Fiddle Foundation National Autism Center Autism Society of America Professional Firefighter Association of New Jersey (PFANJ)
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Corzine Budget Reduces State Government, Preserves Priorities
New Jersey’s seniors, children, and most vulnerable to be protected
TRENTON - Governor Jon S. Corzine delivered a $29.8 billion budget to the Legislature in early March and said that even in these dire financial times his spending plan is based on the administration's core values of nurturing children, honoring seniors and protecting those who have been hit hardest by the national economic crisis.
The FY2010 budget is $1 billion smaller than the first budget the governor presented four years ago, making him the first New Jersey governor in more than 60 years to reduce state spending over the course of a first term in office.
At the same time, the governor told lawmakers, he has made every effort to reduce the size of government and minimize the tax burden on New Jerseyans. The budget saves nearly $400 million with a proposed wage freeze and furlough of state workers.
"Around kitchen tables, every family knows what it means to make tough choices in these tough times," Governor Corzine said. "But people also understand the importance of making the right choices. They identify their most important priorities, and they change their spending habits to live within their means. That's exactly what those of us in this chamber must do in this budget session."
The budget includes:
$4 billion in baseline spending cuts, with more than 850 line items taking a direct hit;
$25 million in funding for pre-school expansion and an increase in direct school aid by $300 million for K-12 education;
funding for food banks, charity care, and worker retraining.
At the same time, the budget expands the senior property tax freeze and preserves property tax rebates for two-thirds of New Jersey homeowners who qualified last year. This represents over $1 billion in direct property tax relief for 1 million New Jerseyans in the coming year.
The Governor noted that this year's $29.8 billion budget is about $3 billion less than the budget enacted in June, representing the largest one-year spending cut in State history.
"We must maintain our priorities at the same time that we work to minimize the tax burden on our citizens," Governor Corzine said. "These priorities and values are the same ones that have guided my Administration since taking office."
In terms of baseline spending, the budget deals with a $7 billion gap by reducing spending more than $4 billion, using $2 billion in federal recovery act funds and just under $1 billion in revenue solutions that include a one-year only tax increase on the wealthiest one percent of New Jerseyans, those who make more than $500,000 a year.
"We are making the tough choices to do the right thing," Governor Corzine said.
Other key elements of the FY 2010 budget include:
Increased Family Care funding by $193 million and an additional $113 million for Mental Health and Developmental Disability Support;
Cuts in the operational costs of state government of more than $380 million;
Increased funding for schools and supports and expands early childhood education programs;
Near level funding preserved for municipalities, hospitals and higher education;
About half of all budget spending for property tax relief.
While the global economic recession has presented substantial challenges for the current budget year, Governor Corzine said, it is an exercise necessary to build a better future.
In October, Governor Corzine announced New Jersey's Economic Assistance and Recovery Plan during a joint session of the New Jersey Legislature. Working with the Legislature, the Governor's Plan advanced numerous efforts to stimulate New Jersey's economy, create jobs, combat hunger, provide home energy assistance, and take proactive initiatives to prevent home foreclosures - all in response to the slumping national economy. The Economic Assistance and Recovery Plan also provided legislation and initiatives for a dramatically improved business climate in New Jersey to provide incentive for businesses to remain in state while enticing others to relocate here.
"We will pull together as a community and a nation and build for a more prosperous tomorrow," Governor Corzine said. "While the current crisis presents new challenges, it is not unlike others we have dealt with in the past as a state and as a nation. And we can get through these perilous times working together."
In the past three years, Governor Corzine has gotten rid of gimmicks in the State budget, reduced the overall size of government by almost 7,000 employees and eliminated departments to make government more efficient. The Governor also negotiated with public employee unions and mandated that they contribute to the cost of their health care for the first time, while extending the retirement age to age 62 and capping the pensions of new state workers. These measures allow the state to save $6.6 billion through 2022.
"This budget continues a four year pattern of making tough choices that may not be politically popular today but which put our state on a stronger footing for tomorrow," Governor Corzine said.
Self-Directed Bill Signed into Law
The Self-directed Rights Act passed the Senate and Assembly.
Autism New Jersey Announces, Act Signed into Law
"Self-Directed Support Services for Persons with Developmental Disabilities Rights Act” It is with great excitement that Autism New Jersey brings you the news of the signing of The Self-Directed Rights Act, which was passed by the Senate and Assembly and was signed into law by Governor Corzine on January 12th. Indeed, 2009 has begun on a successful note for the autism community! This is an incredible victory for New Jerseyans impacted by autism spectrum disorders and the developmental disability community at large.
The Assembly version A2259, was introduced by Assembly Speaker Joseph J. Roberts Jr., (D-15) Assemblywoman Joan Voss, (D-38) Assemblyman Gary Schaer, (D-36) and Assemblywoman Connie Wagner (D-38, ) and adds protections to individuals with developmental disabilities who choose self-directed supports through the Division of Developmental Disabilities (DDD). The Senate version, S1650, was introduced by Senator Joseph F. Vitale (D-19), and Senator Diane Allen (R-7).
Compelled by the voice of our constituents to see this bill signed into law, Autism New Jersey organized the significant advocacy efforts and collaboration with the Legislature and the Governor’s office that led to the success of this legislation. “I am very grateful for the compassionate support and the support of the entire Assembly and Senate" said parent and Autism New Jersey Board member Kathy Moore who testified on behalf of her family. "This legislation will help ensure that adults with developmental disabilities have the same rights under a self-directed support service option as those living in a state facility. Support services that give our loved ones a chance to meet their full potential are essential.” In addition to Board Member Kathy Moore, Autism New Jersey is grateful to the work of Autism New Jersey Board Member and Public Policy Committee member, Herb Hinkle, for his work on behalf of this critical legislation. “It takes true champions of public policy to see a bill such as this through the entire legislative process. Families will benefit from the work of the leaders that made this happen,” said Leslie Long, Autism New Jersey’s Director of Public Policy.
Please write and thank the important sponsors in the Assembly and Senate listed below. As always, thank you for your support. Please click on the link provided below to write to a specific legislator.
Roberts and Prieto Ask State Health Chief Whether Breakthrough Can Help NJ Detect Autism Earlier
(TRENTON) – Assembly Speaker Joseph J. Roberts, Jr. and Assemblyman Vincent Prieto today sent a letter to the state health commissioner asking whether a new breakthrough could help New Jersey diagnose and treat autism earlier. A new study found unique brain wave patterns spotted for the first time in autistic children may explain why they have trouble communicating. Researchers hope the technique could diagnose autism as early as age 1. Doctors typically have been unable to diagnose autism until age 2. “Studies have repeatedly shown the earlier autism is detected, the more likely treatment can be prescribed to minimize its impacts later in life,” said Roberts (D-Camden) and Prieto (D-Hudson). Roberts and Prieto noted they’ve been working with autism advocates to amend legislation they’re sponsoring (A-2238) to require insurance companies to cover autism treatments. The changes would ensure early autism screenings are covered by insurance. New Jersey has the nation’s highest autism rate - one in 94 children, compared to the national average of one in 150. Roberts has championed two legislative packages to raise awareness of autism and strengthen the state’s response to autism disorders. Roberts asked Commissioner Heather Howard whether the noninvasive technology could be incorporated into the state’s early intervention programs for children who may have autism. They also encouraged the Governor’s Council on Autism to look into this and other research to help identify autism at an early age. “I look forward to working with you to ensure autistic children in New Jersey are properly diagnosed and receive appropriate treatment as early as possible,” Roberts and Prieto wrote to Howard.
New Jersey's Election Results
Click here to view the election results.
Critical Information on State Budget
Governor Corzine recently announced that he is convening a Joint Session of the State Legislature to unveil a new, multi-faceted plan to stimulate New Jersey's economy. While some broad aspects of the plan have emerged, there has been increased speculation that funding for existing programs may be reduced or redirected to new initiatives. This may included additional cuts to services provided by the Department of Human Services, and perhaps the Division of Developmental Disabilities (DDD). Because so many individuals with autism are affected by DDD's budget, Autism New Jerseyb is closely monitoring activities in Trenton as they relate to services for individuals on the autism spectrum, and advocating for those we serve. As events unfold this week, Autism New Jersey's public policy team will provide you with updates and recommended action items. If you have any questions and/or concerns, please contact Autism New Jersey's Department of Public Policy and Systems Advocacy at 609-883-8100 ext. 24 or 48.
Second Package of Autism Bills Proposed
NJ Assembly leaders have proposed a second package of bills to support New Jersey residents affected by autism spectrum disorders (ASDs). The six bills establish a further commitment to individuals with ASDs in New Jersey.
Last year, the Legislature and Governor Jon Corzine identified autism as a primary health concern for New Jersey. In September, Governor Corzine approved New Jersey’s most comprehensive autism-related legislation ever, including establishing a task force for adults with autism, mandating childhood screening and dedicating millions of dollars to autism research.
A second wave of autism legislation has been proposed in the New Jersey General Assembly and Senate. The bills include:
- A2256/S1647 - Provides an Autism Advocate in the Department of the Public Advocate.
- A2257/S1648 - The establishment of a website as a clearinghouse for all autism-related services available in NJ.
- AR105 - Encourages a student peer program in Grades 7-12 for typical students to interact with student affected by autism, in addition, it encourages peers as partners in higher education.
A2258/S1649 - An Autism Identification Card.
- A2238/S1651 - Requires health benefits for certain therapies for the treatment of ASDs.
- A2259/S1650 - Adds protections to individuals with developmental disabilities that choose self-directed residential support services through the Division of Developmental Disabilities.
- A1908/S1217 - Requires DHSS and DHS to establish autism awareness program for emergency medical technicians, police officers, and firefighters.
New Jersey Adults wth Autism Task Force Established and Appointing Members
The State of New Jersey has established an Adults with Autism Task Force to study and evaluate the needs of adults with autism in New Jersey, and develop recommendations relating to job training and placement, housing and long-term care. The recommendations of the Task Force will comprise the basis for a comprehensive plan for meeting the needs of adults with autism. The Task Force will report its findings and recommendations to the Governor and Legislature within 12 months of the group beginning its work. Autism New Jersey's Director of Public Policy and Systems Advocacy, Leslie Long, is an appointed member of the group. For more information on the Task Force and its apponted members,
click here
and navigate down the page to the listing for "New Jersey Adults with Autism Task Force."
Current Federal Autism Policy Initiatives:
House approves $8M for autism
WASHINGTON, D.C. "" U.S. Reps. Chris Smith, R-Hamilton, and Mike Doyle, R-Pa., announced that the House approved $8 million in funding for a research program to help military families with children who suffer from autism spectrum disorders.
Smith and Doyle, co-chairs of the bipartisan Coalition on Autism Research and Education, said the funding has been included in the "FY10 Defense Appropriations Act." The bill passed the House 400-30.
"By their nature, military families face tough challenges and sacrifices as they cope with the rigors and stress of deployments and warfare," said Smith. "But military families who also have an autistic child are under tremendous pressure."
Research directed by the DOD program will not only help the more than 12,000 military children currently affected by autism, but will also benefit the general autism population, Smith and Doyle said in a release.
Autism Treatment Acceleration Act of 2009 - Federal Autism Insurance Reform
Health The Autism Treatment Acceleration Act (S. 819, H.R. 2413) requires health insurers to provide coverage for the diagnosis and treatment of autism and authorizes federal funding for a wide range of service, treatment, support and research initiatives. President Obama has stated he will sign the final health care reform bill by the end of October.
Autism New Jersey Supports The Helping Hands Autism Act of 2008, New Autism Legislation Announced by U.S. Senator Robert Menendez
Ewing, NJ: Members of the New Jersey Center for Outreach and Services for the Autism Community (Autism New Jersey) attended a press conference today and applauded U.S. Senator Robert Menendez's (D-NJ) announcement of a new plan to support families affected by autism spectrum disorders (ASDs). The Helping Hands Autism Act of 2008 aims to increase Housing, Awareness and Navigation Demonstration Services (HANDS) for individuals with ASDs. It is expected to combine guidance for families seeking ASD services and care, awareness training for first responders and a task force on housing for adults with autism. New Jersey, where 1 in 94 children is diagnosed with an ASD, has the highest rate of autism in the nation. Today's event was held at the Theodore Roosevelt No. 5 Elementary School in Weehawken, NJ, and follows several pieces of autism legislation introduced in the past year.
Autism New Jersey Executive Director Linda Meyer and Director of Public Policy and Systems Advocacy Leslie Long attended today's event along with families affected by ASDs, and representatives of Autism Speaks, a national organization. Several people addressed the positive impact this legislation can have on more than 87,000 state residents affected by an ASD.
Autism New Jersey thanked Senator Menendez for listening to the needs of New Jersey's autism community and acknowledging Autism New Jersey as a valuable resource for families and professionals who support them. "The Helping Hands for Autism Act marks a great step toward an improved quality of life for individuals affected by autism spectrum disorders," said Linda Meyer. "The autism community represents both a medical and financial challenge for our communities. As the state's budget tightens, states need to look for federal partners to help solve difficult problems. Senator Menendez, thank you for working to create a long overdue federal and state partnership to benefit the autism community," Meyer concluded.
"Nothing is more important to families than to know that their government understands the issues they are facing and to present solutions to aid them," said Leslie Long, whose department educates families, legislators, employers and the community on the lifelong needs of individuals affected by ASDs. "We believe that Senator Menendez has empowered the autism community through this much needed and very important legislation."
Click here to read a summary of The Helping Hands Autism Act of 2008.
Proposed Federal Legislation to Establish Disability Savings Act of 2008
U.S. Senator Christopher Dodd (D-CT) has introduced a bill to encourage individuals with disabilities and their families to save private funds for disability-related expenses to supplement, not supplant, benefits provided by other sources (including Medicaid and private insurance) so that they can maintain health, independence, and quality of life.
The bill encourages individuals with disabilities and their families to save personal funds for their unique disability-related needs in Disability Savings Accounts (DSAs). It is hoped that the establishment of DSAs will promote the investment of private funds in the long-term well-being of individuals with disabilities through tax-advantaged savings tools, including a refundable tax credit for low-income savers, while protecting the beneficiary’s access to critical public supports.
Click here to learn more about Senator Dodd's bill.
Expanding the Promise for Individuals with Autism Act of 2007 (EPIAA)
Senator Hillary Rodham Clinton (D-NY) and Senator Wayne Allard (R-CO), have sponsored the Expanding the Promise for Individuals with Autism Act of 2007 (EPIAA). The Act would dramatically expand federal funding for life-long services for people with autism. The EPIAA would authorize approximately $350 million in new federal funding – above and beyond all existing federal dollars – for key programs related to treatments, interventions and services for both children and adults with autism.
The Act would also authorize the establishment of a task force – which will include significant representation from the autism community – that will report to Congress and the Executive Branch on the state of evidence-based biomedical and behavioral treatments and services for both children and adults with autism, including identifying gaps in applied research on such treatments, interventions and services. It would also mandate a GAO study on service provision and financing.
Click here to read Congress' findings and the full text of the bill.
Current Judicial Issues of Note:
P&A Files Federal Waiting List Action
New Jersey Protection and Advocacy (NJP&A) has filed a lawsuit against the in Federal District Court against the New Jersey Department of Human Services alleging it has failed to meet its legal responsibility to provide housing for people who want or need to live outside of their family homes. The suit alleges that the Department has violated the Americans with Disabilities Act and Federal Medicaid Law in its use of waiting lists, and its failure to: provide prompt services, assess the needs of individuals on waiting lists, provide services to wait-listed individuals, inform individuals of their right to choose integrated, less restrictive services, and properly use Medicaid Home and Community-based Waivers for qualified individuals who are seeking less restrictive services.
NJP&A partnered with the private law firm of Lowenstein Sandler in drafting and filing the action. Several individuals, who were named anonymously, along with The New Jersey Association of Community Providers, The American Association on Intellectual and Developmental Disabilities, and The Alliance for the Betterment of Citizens with Disabilities, were named as interested parties. Click here to read the complaint in pdf format.